Joining forces to achieve early diagnosis and equitable treatment of rare diseases
D'Genes and UCAM host patients, families and experts in a leading international forum on rare diseases
UCAM Cartagena hosts the 7th D'Genes conference on humanisation and research in rare diseases
The role of precision medicine, coordination between primary and specialised health care in pharmacological treatments, and advances in patients with multiple myeloma will be analysed tomorrow, Friday.
Further genetic studies are needed for a better approach to rare diseases
Juan Carrión, President of D'Genes, recalled that the associative movement can help make rare diseases a priority for the health system
Nearly 800 professionals, affected patients and relatives come together at the International Congress on Rare Diseases
The event, organised by D'Genes and UCAM, will be followed online as of today and until Friday by more than 20 countries, especially countries from Latin America. Carolina Darias, Minister of Health, has spoken at the inauguration of the event.
“We need early diagnosis, equitable access to medicines and more investment in research”
Juan Carrión, president of D’Genes, highlights the extensive follow-up of an event that, organised together with UCAM, has been followed ‘online’ by more than 1,000 participants from 20 countries
My voice will never stop fighting; nothing is impossible
The testimonies of Noah Higón, diagnosed with seven rare diseases, and Sonia Torres, mother of a child affected by one of these pathologies, have opened the 13th International Conference on Rare Diseases, organised by D’GENES and UCAM, an event that until Thursday brings together 900 participants from 20 countries online