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The role of precision medicine, coordination between primary and specialised health care in pharmacological treatments, and advances in patients with multiple myeloma will be analysed tomorrow, Friday.
Juan Carrión, President of D'Genes, recalled that the associative movement can help make rare diseases a priority for the health system
More than four hundred people attended the first day of the event organised by D'Genes and UCAM, which was streamed in sixteen countries
The event, organised by D'Genes and UCAM, will be followed online as of today and until Friday by more than 20 countries, especially countries from Latin America. Carolina Darias, Minister of Health, has spoken at the inauguration of the event.
Juan Carrión, president of D’Genes, highlights the extensive follow-up of an event that, organised together with UCAM, has been followed ‘online’ by more than 1,000 participants from 20 countries
The testimonies of Noah Higón, diagnosed with seven rare diseases, and Sonia Torres, mother of a child affected by one of these pathologies, have opened the 13th International Conference on Rare Diseases, organised by D’GENES and UCAM, an event that until Thursday brings together 900 participants from 20 countries online
The Secretary General of Health announced during the inauguration event of the VIII National Congress of Rare Diseases, celebrated at UCAM, the implementation of a pilot program to accelerate the diagnosis of those diseases.
