Juan Carrión, president of the Rare Diseases Association D'Genes and Juan

José Pedreño, Regional Minister of Health of the Autonomous Community,

will inaugurate the 'VII Worker of Humanisation and Research in Rare

Diseases’ tomorrow, Friday 25 November at 10am, in the auditorium of the

UCAM Campus in Cartagena. Access will be free until full capacity is

reached, except for students applying for credits, who must register in

advance.

The event will include a presentation by María Juliana Ballesta, from the

Instituto Murciano de Investigación Biosanitaria and associate professor at

UCAM, who will report on the progress of the IMPACT-GENÓMICA

project, which promotes a cooperative infrastructure for highly complex

genetic studies based on research technologies. This infrastructure would

equitably accelerate the transfer of R&D and would improve efficiency in the

use of the resources of the National Health System.

María Jesús Rodríguez, secretary of the region's Official Association of

Pharmacists, will speak on ‘Coordination between Primary and Specialised

Healt Care in Pharmacological Treatments’, while María Dolores García,

PhD in Medicine and associate professor at UCAM, will speak on advances in

patients with multiple melanoma.

New care centre for people with rare diseases in Cartagena

In addition, José Javier Martínez Garcerán, Neurology specialist at the

Hospital Santa Lucía, will explain the challenges in diagnosis and treatment of

pulmonary hypertension. The morning will also see the presentation of

the ‘Pequeñas caricias’ (Little caresses) project of the Neonatal Unit of the

Santa Lucía Hospital.

During the event, the new ‘Leire González Diaz’ Comprehensive Care

Centre for People with Rare and Undiagnosed Diseases, will be presented.

This centre will opened soon in the Urbanización Nueva Cartagena.